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  1. #5461
    Community Member doomboyv2's Avatar
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    Quote Originally Posted by cdbd3rd View Post
    Doc has called for a family meeting Saturday morning. Apparently there's a Chromosone-17 abnormality which complicates recovery even with a marrow transplant. From what I'm reading, this turns the situation from a 1-2 month recovery/remission into something far far worse.

    #DarkPlace
    my toes are now crossed as well.
    we're here for you man.
    Doppelganger? Whatever are you talking about, my dear?

  2. #5462
    Founder & Hero cdbd3rd's Avatar
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    Quote Originally Posted by doomboyv2 View Post
    my toes are now crossed as well.
    we're here for you man.
    Thanks, DB.

    Mine for your folks as well.
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  3. #5463
    Founder & Hero cdbd3rd's Avatar
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    Even tho I never took the time to learn her name, I still remember those 80s music vids. Early MTV before they got infected & destroyed.

    Tawny Kitaen. Only 59...

    https://www.rollingstone.com/music/m...VJb4kXnwx0X8fo



    Last edited by cdbd3rd; 05-08-2021 at 05:41 PM.
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  4. #5464
    Founder & Hero cdbd3rd's Avatar
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    Morning meeting with the docs. Didn't learn much we didn't already know - except how urine-poor the communication between departments is at this hospital. Had to have 'approval' for the multi-person meeting, but each step of the way in had to explain it to every nurse and security point, even after getting to her floor and nurses station.

    So anyway.

    Still waiting on more results from more tests that dig further into the effect her deleted C17 chromosome is going to have on future treatment choices. Apparently the current abnormality was only found in one specific cell of the last test. Next test covering a larger sample to determine how prevalent the issue is. If no further complications come up from the chromosome issue, doc is setting chances at remission from the one treatment at 60-80%, but made sure to emphasize the remaining test results that aren't back yet.

    She's not in great discomfort from the chemo so far, but it's still first week of the 4-week treatment.

    /Trudging continues.
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  5. #5465
    Cosmetic Guru Aelonwy's Avatar
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    Well I'm going to keep praying.

    I saw this and thought it might amuse you.

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  6. #5466
    Founder & Hero cdbd3rd's Avatar
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    Quote Originally Posted by Aelonwy View Post
    Well I'm going to keep praying.

    I saw this and thought it might amuse you.

    Perfect!!
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  7. #5467
    Founder & Hero cdbd3rd's Avatar
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    Threw together a quickie FB profile pic supporting the daughter. (she was 14-15 in the photo I used)

    ...and....

    __________________________________________________ ______________





    ....and just got a text a bit ago, The extended testing on the C17 chromosome result is back - with no abnormality present. Apparently was just a buggy cell they picked for the initial test. This is a good thing.
    Last edited by cdbd3rd; 05-11-2021 at 04:44 PM.
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  8. #5468
    Cosmetic Guru Aelonwy's Avatar
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    Quote Originally Posted by cdbd3rd View Post
    ....and just got a text a bit ago, The extended testing on the C17 chromosome result is back - with no abnormality present. Apparently was just a buggy cell they picked for the initial test. This is a good thing.
    Oh that is such good news! I'm so glad.
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  9. #5469
    Founder & Hero cdbd3rd's Avatar
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    No hemoglobin today, just a bag of platelets.

    And I think she's feeling okay today. Is complaining that her OT is irritating her. That's more normal for her. Lol.
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  10. #5470
    Community Member doomboyv2's Avatar
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    Quote Originally Posted by cdbd3rd View Post
    No hemoglobin today, just a bag of platelets.

    And I think she's feeling okay today. Is complaining that her OT is irritating her. That's more normal for her. Lol.
    man glad to hear the improving news.
    fingers slightly relaxed but still crossed
    Doppelganger? Whatever are you talking about, my dear?

  11. #5471
    Founder & Hero cdbd3rd's Avatar
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    No drastic changes past couple days.

    Blood work still hovering in the okay-but-not-great area. Platelets still being a little argumentative. Bone marrow test Monday.
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  12. #5472
    Cosmetic Guru Aelonwy's Avatar
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    Still praying. Waiting, hoping for you.
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  13. #5473
    Community Member Bekki's Avatar
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    Quote Originally Posted by cdbd3rd View Post
    Morning meeting with the docs. Didn't learn much we didn't already know - except how urine-poor the communication between departments is at this hospital. Had to have 'approval' for the multi-person meeting, but each step of the way in had to explain it to every nurse and security point, even after getting to her floor and nurses station.

    So anyway.

    Still waiting on more results from more tests that dig further into the effect her deleted C17 chromosome is going to have on future treatment choices. Apparently the current abnormality was only found in one specific cell of the last test. Next test covering a larger sample to determine how prevalent the issue is. If no further complications come up from the chromosome issue, doc is setting chances at remission from the one treatment at 60-80%, but made sure to emphasize the remaining test results that aren't back yet.

    She's not in great discomfort from the chemo so far, but it's still first week of the 4-week treatment.

    /Trudging continues.

    *Wanders in... works through posts... reads this...

    “”Wait What!?!?!?”

    “Oh HE@&$&@$$&@!!!! NO!!!!”

    *Goes into back you of Tavern....

    * Severable ancient Dwarven rituals performed...
    *Very mysterious chanting drifts out...

    *Bekki returns with a curiously smoking draft of an ancient Dwarven brew.

    “This’ll fix you up... I promise.”
    *Winks at CD...

    All kidding aside Brother...
    If you need anything. Call.

    Sending all the positive vibe we can your way.

    And that doesn’t to work...
    “You are not AUTHORIZED TO CHECK OUT SAILOR!!!”

    But seriously CALL IF YOU NEED ANYTHING.
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  14. #5474
    Founder & Hero cdbd3rd's Avatar
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    Heya Bek. Appreciate the positive waves, and the call earlier.


    She got the marrow test today. Results back later this week.


    Now, back on the home front... Eldest cat gave in to his age early hours this morning. I was waiting at the vet's office for them to open so we could help him across the bridge. Just shy of 17.


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  15. #5475
    Founder & Hero cdbd3rd's Avatar
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    Just realized I didn't do my Gold rolls this past weekend for the double XP 'event'. Tried Saturday evening, but hadn't reset for the week yet. Got busy with RL junk, and never got back to it. Lol-bummed.

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  16. #5476
    Founder & Hero cdbd3rd's Avatar
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    Sometimes strolling around the interwebs you run across a random pic and you go, "Yeah, I get it."....

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  17. #5477
    Community Member doomboyv2's Avatar
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    Quote Originally Posted by cdbd3rd View Post
    Sometimes strolling around the interwebs you run across a random pic and you go, "Yeah, I get it."....

    hey, gotta do whatcha gotta do
    Doppelganger? Whatever are you talking about, my dear?

  18. #5478
    Founder & Hero cdbd3rd's Avatar
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    Blood numbers still running low, but not critically. Potassium running low now, as well as some painful intestinal side-effects. Still waiting on results from last marrow test that will define how well treatment is working.

    And the hair thing. Yeah.
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  19. #5479
    Community Member doomboyv2's Avatar
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    Quote Originally Posted by cdbd3rd View Post
    Blood numbers still running low, but not critically. Potassium running low now, as well as some painful intestinal side-effects. Still waiting on results from last marrow test that will define how well treatment is working.

    And the hair thing. Yeah.
    yeesh, i know how hard the hair thing can be, just on self confidence on alone.

    though if it helps, you can tell her Uncle Doomboy says that punk looks are badass, and nothin's more badass than fighting cancer.




    wait, how old is she?
    Doppelganger? Whatever are you talking about, my dear?

  20. #5480
    Cosmetic Guru Aelonwy's Avatar
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    Quote Originally Posted by cdbd3rd View Post
    Blood numbers still running low, but not critically. Potassium running low now, as well as some painful intestinal side-effects. Still waiting on results from last marrow test that will define how well treatment is working.

    And the hair thing. Yeah.
    Cute, beautiful, tough, funny, zany hats. Hats can be MOOD. Bolster confidence by wearing hats together, matching hats, synergizing hats, themed hats.

    *hugs and prayers*
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